Les études scientifiques récentes
Publié le 20 mars 2025
Anomalies du développement / malformations
| Titre | N° Clinicaltrial | Inclusions | Investigateur (trice) principal(e) | Contact RespiRare |
|---|---|---|---|---|
| Respiratory and Psychological Impact of Elective Surgery of Congenital Lung Malformations (MALFPULM2) | NCT06424392 | En cours | C Delacourt | christophe.delacourt@aphp.fr |
| Can Pre-operative Flexible 3D Models of Pulmonary Malformations Facilitate Thoracoscopic Resection (3DLP) | NCT03913416 | En cours | F Hameury | frederic.hameury@chu-lyon.fr |
Dysplasie bronchopulmonaire
| Titre | N° Clinicaltrial | Inclusions | Investigateur (trice) principal(e) | Contact RespiRare |
|---|---|---|---|---|
| p16Ink4a in Bronchopulmonary Dysplasia in Children (DBP16) | NCT03540680 | A venir | R Epaud | Ralph.Epaud@chicreteil.fr |
| Study of the Effect of Hydrocortisone Administered for the Prevention of Pulmonary Bronchodysplasia (PREMILOC Trial) on the Determinants of Systemic Blood Pressure in Children (PREMILOCAP) (PREMILOCAP) | NCT05451264 | En cours | C Delclaux | christophe.delclaux@aphp.fr |
Pathologies interstitielles
| Titre | N° Clinicaltrial | Inclusions | Investigateur (trice) principal(e) | Contact RespiRare |
|---|---|---|---|---|
| Impact of Mutations in Aminoacyl TRNA Synthetases on Protein Translation and Cellular Stress (FIBROMARS) | NCT05514470 | A venir | A Hadchouel-Duverge | alice.hadchouel-duverge@aphp.fr |
| Efficacy of Methylprednisolone Pulses in Neuroendocrine Celles Hyperplasia of Infancy : An Early Phase Study (CORTICONEHI) | NCT06471556 | A venir | N Nathan | nadia.nathan@aphp.fr |
| Interstitial Lung Disease: A Study From Infancy to Elderly Including Relatives (RaDiCo-ILD 2) | NCT06036719 | En cours | V Cottin / A Clément | vincent.cottin@chu-lyon.fr annick.clement@aphp.fr |
| A Study to Evaluate Long-term Safety of Nintedanib in Children and Adolescents With Interstitial Lung Disease (InPedILD®-ON) | NCT05285982 | Terminées | R Epaud | Ralph.Epaud@chicreteil.fr |
Anomalies de la ventilation / pathologies du sommeil
| Titre | N° Clinicaltrial | Inclusions | Investigateur (trice) principal(e) | Contact RespiRare |
|---|---|---|---|---|
| Sleep-disordered Breathing and Neurocognitive Assessment in Children and Young Adults (TRSPed) | NCT04971850 | En cours | B Fauroux | brigitte.fauroux@aphp.fr |
| Relationship Between Breathing and Attention in Children With Ondine Syndrome (OndineCo) | NCT06337149 | En cours | B Dudoignon | benjamin.dudoignon@aphp.fr |
| Overview: Use of Respiratory Support At Home in Children (ELIPSE) | NCT06692660 | A venir | J Cassibba | jcassibba@chu-grenoble.fr |
Dyskinesie ciliaire primitive
| Titre | N° Clinicaltrial | Inclusions | Investigateur (trice) principal(e) | Contact RespiRare |
|---|---|---|---|---|
| DCP (RaDiCo Cohort) (RaDiCo-DCP) | NCT05951478 | Terminées | B Maitre | bernard.maitre@chicreteil.fr |
| Analysis of the Molecular Composition of Tubal Cilia in Patients With or Without Ectopic Pregnancy (CILTUBE) | NCT05374720 | En cours | R Mitri-Frangieh | bernard.maitre@chicreteil.fr |
Autres
| Titre | N° Clinicaltrial | Inclusions | Investigateur (trice) principal(e) | Contact RespiRare |
|---|---|---|---|---|
| Effects of Delayed Growth on the Quality of Life of Children Treated for a Chronic Disease and Quality of Life Study of Their Parents and Siblings (CROQUIE) | NCT04733391 | En cours | Emilie Garrido-Pradalié | JeanChristophe.DUBUS@ap-hm.fr |